EIMD Logo  Patient registry
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This patient registry arises from the project E-IMD
which has received funding
from the European Union,
in the framework of the
Health Programme 2008-2013
EAHC Health Programme
The E-IMD registry has been sustained after the end of the EU funding period by funding from the Kindness for Kids Foundation
Kindness for Kids
Participating centers
Number of partipicating centers:   55
Number of all registered patients:   1283
Number of active patients:   1205


Please click on a center for more information...

Austria
Innsbruck
Medizinische Universität Innsbruck, Department für Kinder- und Jugendheilkunde
  Registered patients - Total: 23 - Active: 23
Belgium
Antwerpen
Universitair Ziekenhuis Antwerpen (UZA)
  Registered patients - Total: 1 - Active: 1
Bruxelles
Cliniques Universitaires St Luc, Université Catholique de Louvain
  Registered patients - Total: 2 - Active: 2
Bruxelles
Hôpital Universitaire des Enfants Reine Fabiola
  Registered patients - Total: 13 - Active: 13
Bruxelles
University Hospital Vrije Universiteit Brussel
  Registered patients - Total: 10 - Active: 10
Gosselies (Charleroi)
Centre Agréé des Maladies Héréditaires du Métabolisme
  Registered patients - Total: 0 - Active: 0
Liege
Metabolic Unit - Departement of Medical Genetics CHU Liège
  Registered patients - Total: 3 - Active: 3
Canada
Winnipeg
University of Manitoba, Faculty of Medicine
  Registered patients - Total: 0 - Active: 0
Switzerland
Bern
Universitätsspital Bern
  Registered patients - Total: 0 - Active: 0
Zurich
Kinderspital Zürich, Universitäts-Kinderkliniken
  Registered patients - Total: 30 - Active: 30
Serbia and Montenegro
Novi Beograd
Institut za zdravstvenu zaštitu majke i deteta Srbije
  Registered patients - Total: 10 - Active: 9
Czech Republic
Prague 2
Charles University & General University of Prague, First Faculty of Medicine
  Registered patients - Total: 38 - Active: 36
Germany
Berlin
Charite Berlin
  Registered patients - Total: 0 - Active: 0
Düsseldorf
Heinrich-Heine-Universität Düsseldorf
  Registered patients - Total: 15 - Active: 13
Frankfurt
Universitätsklinikum Frankfurt, Klinik für Kinder und Jugendmedizin
  Registered patients - Total: 5 - Active: 5
Freiburg
Universitätsklinikum Freiburg
  Registered patients - Total: 1 - Active: 1
Hamburg
Universitätsklinikum Eppendorf, Klinik für Kinder- und Jugendmedizin
  Registered patients - Total: 16 - Active: 12
Heidelberg
Universitätsklinikum Heidelberg, Zentrum für Kinder- und Jugendmedizin
  Registered patients - Total: 202 - Active: 184
München
Klinikum der Universität München
  Registered patients - Total: 14 - Active: 13
Reutlingen
Klinik für Kinder- und Jugendmedizin, Klinikum am Steinenberg
  Registered patients - Total: 30 - Active: 28
Test centre
Test centre
  Registered patients - Total: 30 - Active: 17
Ulm
Universitätsklinikum Ulm
  Registered patients - Total: 2 - Active: 2
Denmark
Copenhagen
Klinisk Genetisk Afdeling Rigshospitalet
  Registered patients - Total: 49 - Active: 45
Spain
Barcelona
Hospital San Joan de Deu
  Registered patients - Total: 113 - Active: 105
El Palmar
Inborn Metabolic Disease Unit
  Registered patients - Total: 8 - Active: 8
Las Palmas de Gran Canaria
Hospital Universitario Materno-Infantil de Canarias
  Registered patients - Total: 12 - Active: 12
Málaga
Hospital Materno-Infantil (HRU Carlos Haya)
  Registered patients - Total: 16 - Active: 14
Santiago de Compostela
Hospital Clínico Universitario de Santiago de Compostela
  Registered patients - Total: 0 - Active: 0
France
Lille
Centre Hospitalier Régional et Universitaire de Lille
  Registered patients - Total: 34 - Active: 32
Marseille
Centre de référence des maladies héréditaires du Métabolisme
  Registered patients - Total: 27 - Active: 27
Paris
Hôpital Necker-Enfants Malades, Assistance Publique-Hôpitaux de Paris
  Registered patients - Total: 113 - Active: 113
Paris
Hôpital Robert Debré, Université Paris
  Registered patients - Total: 25 - Active: 25
Toulouse
Hôpital des Enfants- CHU Toulouse
  Registered patients - Total: 0 - Active: 0
United Kingdom
Birmingham
Birmingham Children’s Hospital NHS Foundation Trust
  Registered patients - Total: 37 - Active: 37
Bradford
Bradford Teaching Hospitals NHS Trust
  Registered patients - Total: 3 - Active: 3
London
Evelina Children's Hospital, St Thomas' Hospital
  Registered patients - Total: 34 - Active: 34
London
Great Ormond Street Hospital
  Registered patients - Total: 37 - Active: 36
London
National Hospital for Neurology and Neurosurgery
  Registered patients - Total: 22 - Active: 22
Manchester
Central Manchester and Manchester Children's University Hospital
  Registered patients - Total: 24 - Active: 24
Greece
Athens
Agia Sofia Children's Hospital
  Registered patients - Total: 3 - Active: 3
Thessaloniki
Hospital Thessaloniki 'Hippocration'
  Registered patients - Total: 8 - Active: 8
Croatia
Zagreb
Sveuciliste u Zagrebu, Medicinski fakultet
  Registered patients - Total: 26 - Active: 24
India
Mumbai
N.I.R.M.A.N.
  Registered patients - Total: 8 - Active: 5
Italy
Padova
Azienda Ospedaliera di Padova
  Registered patients - Total: 35 - Active: 35
Rome
Ospedale Pediatrico Bambino Gesù, U.O.C. Patologia Metabolica
  Registered patients - Total: 30 - Active: 30
Japan
Kumamoto city
Kumamoto University Hospital
  Registered patients - Total: 2 - Active: 2
Netherlands
Amsterdam
Academisch Medisch Centrum
  Registered patients - Total: 31 - Active: 24
Rotterdam
Erasmus MC-Sophia Kinderziekenhuis, Erasmus Universiteit Rotterdam
  Registered patients - Total: 14 - Active: 14
Utrecht
Wilhemina Kinderziekenhuis (WKZ)
  Registered patients - Total: 0 - Active: 0
Poland
Warsaw
Instytut “Pomnik-Centrum Zdrowia Dziecka”
  Registered patients - Total: 36 - Active: 34
Portugal
Lisbon
Centro Academico de Medicina de Lisboa
  Registered patients - Total: 0 - Active: 0
Porto
Unidade de Doenças Metabólicas, Serviço de Pediatria, Hospital de S. João, EPE
  Registered patients - Total: 34 - Active: 33
Romania
Bucharest
Institute for Mother and Child Care "Alfred Rusescu"
  Registered patients - Total: 3 - Active: 3
Taiwan
Taipei City, Taiwan
Department of Medical Genetics, National Taiwan University Hospital
  Registered patients - Total: 35 - Active: 35
United States
Washington
Children's National Medical Center
  Registered patients - Total: 17 - Active: 16