EIMD Logo  Patient registry
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About EIMDParticipating centers
This patient registry arises from the project E-IMD
which has received funding
from the European Union,
in the framework of the
Health Programme 2008-2013
EAHC Health Programme
The E-IMD registry has been sustained after the end of the EU funding period by funding from the Kindness for Kids Foundation
Kindness for Kids
Participating centers
Number of partipicating centers:   67
Number of all registered patients:   1758
Number of active patients:   1568


Please click on a center for more information...

Austria
Innsbruck
Medizinische Universität Innsbruck, Department für Kinder- und Jugendheilkunde		   Registered patients - Total: 30 - Active: 26
Belgium
Antwerpen
Universitair Ziekenhuis Antwerpen (UZA)		   Registered patients - Total: 1 - Active: 1
Bruxelles
Cliniques Universitaires St Luc, Université Catholique de Louvain		   Registered patients - Total: 2 - Active: 2
Bruxelles
Hôpital Universitaire des Enfants Reine Fabiola		   Registered patients - Total: 17 - Active: 16
Bruxelles
University Hospital Vrije Universiteit Brussel		   Registered patients - Total: 10 - Active: 10
Gosselies (Charleroi)
Centre Agréé des Maladies Héréditaires du Métabolisme		   Registered patients - Total: 6 - Active: 6
Liege
Metabolic Unit - Departement of Medical Genetics CHU Liège		   Registered patients - Total: 8 - Active: 8
Canada
Winnipeg
University of Manitoba, Faculty of Medicine		   Registered patients - Total: 0 - Active: 0
Switzerland
Bern
Universitätsspital Bern		   Registered patients - Total: 0 - Active: 0
Zurich
Kinderspital Zürich, Universitäts-Kinderkliniken		   Registered patients - Total: 31 - Active: 30
Serbia and Montenegro
Novi Beograd
Institut za zdravstvenu zaštitu majke i deteta Srbije		   Registered patients - Total: 15 - Active: 12
Czech Republic
Prague 2
Charles University & General University of Prague, First Faculty of Medicine		   Registered patients - Total: 38 - Active: 36
Germany
Berlin
Charite Berlin		   Registered patients - Total: 10 - Active: 10
Düsseldorf
Heinrich-Heine-Universität Düsseldorf		   Registered patients - Total: 24 - Active: 21
Erlangen
Universitätsklinikum Erlangen		   Registered patients - Total: 4 - Active: 4
Frankfurt
Universitätsklinikum Frankfurt, Klinik für Kinder und Jugendmedizin		   Registered patients - Total: 13 - Active: 11
Freiburg
Universitätsklinikum Freiburg		   Registered patients - Total: 19 - Active: 19
Göttingen
Universitätsmedizin Göttingen		   Registered patients - Total: 7 - Active: 7
Hamburg
Universitätsklinikum Eppendorf, Klinik für Kinder- und Jugendmedizin		   Registered patients - Total: 50 - Active: 43
Heidelberg
Universitätsklinikum Heidelberg, Zentrum für Kinder- und Jugendmedizin		   Registered patients - Total: 285 - Active: 250
Leipzig
Universitätsklinikum Leipzig		   Registered patients - Total: 8 - Active: 8
München
Klinikum der Universität München		   Registered patients - Total: 26 - Active: 25
Münster
Universitätsklinikum Münster		   Registered patients - Total: 10 - Active: 10
Reutlingen
Klinik für Kinder- und Jugendmedizin, Klinikum am Steinenberg		   Registered patients - Total: 30 - Active: 25
Test centre
Test centre		   Registered patients - Total: 42 - Active: 23
Ulm
Universitätsklinikum Ulm		   Registered patients - Total: 2 - Active: 2
Denmark
Copenhagen
Klinisk Genetisk Afdeling Rigshospitalet		   Registered patients - Total: 64 - Active: 59
Spain
Badalona
University Hospital Germans Trias i Pujol		   Registered patients - Total: 11 - Active: 11
Barcelona
Hospital Clinic de Barcelona		   Registered patients - Total: 0 - Active: 0
Barcelona
Hospital San Joan de Deu		   Registered patients - Total: 113 - Active: 63
El Palmar
Inborn Metabolic Disease Unit		   Registered patients - Total: 8 - Active: 8
Las Palmas de Gran Canaria
Hospital Universitario Materno-Infantil de Canarias		   Registered patients - Total: 13 - Active: 12
Madrid
Hospital Infantil Universitario Niños Jesús		   Registered patients - Total: 14 - Active: 14
Málaga
Hospital Materno-Infantil (HRU Carlos Haya)		   Registered patients - Total: 19 - Active: 17
Palma de Mallorca
Hospital Universitario Son Espases		   Registered patients - Total: 13 - Active: 13
Santiago de Compostela
Hospital Clínico Universitario de Santiago de Compostela		   Registered patients - Total: 17 - Active: 17
France
Lille
Centre Hospitalier Régional et Universitaire de Lille		   Registered patients - Total: 40 - Active: 33
Marseille
Centre de référence des maladies héréditaires du Métabolisme		   Registered patients - Total: 36 - Active: 36
Montpellier
CHU de Montpellier		   Registered patients - Total: 10 - Active: 10
Paris
Hôpital Necker-Enfants Malades, Assistance Publique-Hôpitaux de Paris		   Registered patients - Total: 113 - Active: 113
Paris
Hôpital Robert Debré, Université Paris		   Registered patients - Total: 25 - Active: 25
Toulouse
Hôpital des Enfants- CHU Toulouse		   Registered patients - Total: 0 - Active: 0
United Kingdom
Birmingham
Birmingham Children’s Hospital NHS Foundation Trust		   Registered patients - Total: 37 - Active: 37
Bradford
Bradford Teaching Hospitals NHS Trust		   Registered patients - Total: 3 - Active: 3
London
Evelina Children's Hospital, St Thomas' Hospital		   Registered patients - Total: 34 - Active: 34
London
Great Ormond Street Hospital		   Registered patients - Total: 37 - Active: 36
London
National Hospital for Neurology and Neurosurgery		   Registered patients - Total: 48 - Active: 45
Manchester
Central Manchester and Manchester Children's University Hospital		   Registered patients - Total: 24 - Active: 24
Greece
Athens
Agia Sofia Children's Hospital		   Registered patients - Total: 5 - Active: 5
Thessaloniki
Hospital Thessaloniki 'Hippocration'		   Registered patients - Total: 8 - Active: 8
Croatia
Zagreb
Sveuciliste u Zagrebu, Medicinski fakultet		   Registered patients - Total: 31 - Active: 29
Hungary
Szeged
University of Szeged		   Registered patients - Total: 0 - Active: 0
India
Mumbai
N.I.R.M.A.N.		   Registered patients - Total: 8 - Active: 5
Italy
Padova
Azienda Ospedaliera di Padova		   Registered patients - Total: 60 - Active: 59
Rome
Ospedale Pediatrico Bambino Gesù, U.O.C. Patologia Metabolica		   Registered patients - Total: 62 - Active: 59
Japan
Kumamoto city
Kumamoto University Hospital		   Registered patients - Total: 2 - Active: 2
Moldova, Republic of
Chisinau
Institute of Mother and Child		   Registered patients - Total: 3 - Active: 2
Netherlands
Amsterdam
Academisch Medisch Centrum		   Registered patients - Total: 31 - Active: 20
Rotterdam
Erasmus MC-Sophia Kinderziekenhuis, Erasmus Universiteit Rotterdam		   Registered patients - Total: 19 - Active: 18
Utrecht
Wilhemina Kinderziekenhuis (WKZ)		   Registered patients - Total: 8 - Active: 8
Poland
Warsaw
The Institute of Mother and Child - Instytut Matki i Dziecka		   Registered patients - Total: 48 - Active: 46
Portugal
Lisbon
Centro Academico de Medicina de Lisboa		   Registered patients - Total: 0 - Active: 0
Porto
Unidade de Doenças Metabólicas, Serviço de Pediatria, Hospital de S. João, EPE		   Registered patients - Total: 34 - Active: 33
Romania
Bucharest
Institute for Mother and Child Care "Alfred Rusescu"		   Registered patients - Total: 3 - Active: 3
Taiwan
Taipei City, Taiwan
Department of Medical Genetics, National Taiwan University Hospital		   Registered patients - Total: 46 - Active: 39
United States
Los Angeles
Children's Hospital Los Angeles		   Registered patients - Total: 0 - Active: 0
Washington
Children's National Medical Center		   Registered patients - Total: 21 - Active: 17